Clinical trials · New York
Fabry Disease clinical trials in New York
We’re tracking 6 recruiting fabry disease studies with a site in New York — including Phase 1/Phase 2 studies, each written for real people, not researchers.
Recruiting studies in New York
- NCT06270316RecruitingPhase 1/Phase 2
Gene therapy for classic Fabry disease
This trial tests a new gene therapy called AMT-191 for men with classic Fabry disease who still have symptoms despite standard enzyme replacement therapy. It aims to see if the treatment is safe and can improve symptoms.
New York, New YorkAges 18–50 - NCT05039866Enrolling by invitation
Long-term follow-up after receiving ST-920
This study checks how people are doing long after they previously received ST-920 in an earlier trial. It may help researchers understand long-term safety and outcomes from that treatment.
New York, New YorkAges 18 years+ - NCT06906367Recruiting
Long-term study of Fabry disease treatments in the US
This study looks at how well available Fabry disease treatments (like migalastat or ERT) work over time in real life. It may help doctors understand who benefits most from these medicines.
New York, New YorkAges 18 years+ - NCT00196742Recruiting
Fabry disease registry and pregnancy follow-up
This study collects health information from people with Fabry disease and specifically from pregnant people with Fabry disease. It helps researchers better understand the condition and how pregnancy affects health, using information you already experience in routine care.
Syracuse, New YorkAges Any age - NCT05368038Enrolling by invitation
Newborn screening program for babies up to 4 weeks old
This trial tests a flexible newborn screening process that looks for certain conditions early in life. It may help by catching problems sooner, when treatment can be started earlier.
Brooklyn, New YorkAges Up to 4 weeks - NCT06610019Recruiting
Heart imaging study using MRI
This study uses heart MRI scans to learn more about cardiovascular health in adults. If you are 18 or older and have been referred for a heart MRI at Montefiore, you may be able to join.
The Bronx, New YorkAges 18 years+
Fabry Disease trials by city in New York
Where these studies are running in New York
Institutions with a site for the recruiting fabry disease studies listed above.
- Mount Sinai Health System · 2 studies
- Children's Hospital at Montefiore
- Columbia University Irving Medical Center
- Icahn School of Medicine at Mount Sinai
- Jack D. Weiler Hospital
- Long Island Jewish Medical Center
- Maimonides Medical Center
- Metropolitan Hospital Center
What taking part in a fabry disease study involves
A screening visit first
Before anything else, the study team checks whether you fit — usually a visit with some tests. You can stop at any point, and screening is typically free.
Care at a nearby site
Study visits happen at a clinic or hospital taking part. Many studies cover the cost of the study treatment and related visits, and some reimburse travel.
You stay in control
Taking part is voluntary and you can leave a study at any time, for any reason, without affecting your regular care.
The team decides eligibility
Our fit check is a helpful first read, not a decision. The study team makes the final call after reviewing your health history.
Fabry Disease trials in other states
Common questions
- Are there fabry disease clinical trials in New York?
- Yes. We're currently tracking 6 recruiting fabry disease studies with a site in New York, each rewritten in plain language so you can see what it's testing and who it's for.
- How do I find out if I qualify for a fabry disease study in New York?
- Each study lists its eligibility rules — age, diagnosis, prior treatments. On every trial page we explain these in plain language and offer a short, optional pre-screen for a fit read. The study team makes the final decision.
- Do I have to live in New York to take part?
- Not necessarily. These studies have a site in New York, but eligibility is about your health, not your address — some people travel to take part, and a few studies reimburse travel. The study team can tell you what's required.
- Does it cost anything to join a fabry disease trial?
- Using Clin2 is always free. Many trials cover the study treatment and related visits; some reimburse travel. The study team explains exactly what's covered before you decide.
Not the right time?
New fabry disease studies open in New York regularly. Set up a health profile and we’ll quietly watch for studies that fit you and email you when one opens.
Clin2 helps you find and understand clinical trials and does not provide medical advice. Study data comes from ClinicalTrials.gov. Talk with your doctor about whether a specific trial is right for you.