Clinical trials · Rochester, NY
Facioscapulohumeral Muscular Dystrophy clinical trials in Rochester
We’re tracking 4 recruiting facioscapulohumeral muscular dystrophy studies with a site in or near Rochester — including Phase 1 and Phase 3 studies, each written for real people, not researchers.
Recruiting studies near Rochester
- NCT06721299RecruitingPhase 1
Testing clenbuterol for muscle health in FSHD
This study tests a medication called clenbuterol to see if it can reduce activity of the DUX4 gene, which is believed to cause muscle damage in FSHD. If you have FSHD type 1 or 2, you may be able to join and help researchers understand if this drug can improve muscle health.
Rochester, New YorkAges 18–75 - NCT06847282Recruiting
Motor skills study for children with FSHD
This study looks at how children with FSHD move and function over time. It uses walking tests and optional MRI scans to understand muscle changes. Your child's participation could help researchers learn more about FSHD progression in kids.
Rochester, New YorkAges 5–17 - NCT07038200RecruitingPhase 3
Study of Del-brax (AOC 1020) for People with FSHD
This study tests an experimental medicine called Del-brax (AOC 1020) for people with facioscapulohumeral muscular dystrophy (FSHD). The goal is to see if it can help improve muscle strength and slow the disease. You may be able to join if you have a confirmed FSHD diagnosis and can walk at least 10 meters on your own.
Rochester, New YorkAges 16–70 - NCT00082108Recruiting
Muscle Disease and Family Health Registry
This is a registry study that collects health information from people with myotonic dystrophy (a genetic muscle disease that causes weakness and stiffness) or facioscapulohumeral muscular dystrophy (a genetic condition affecting shoulder and face muscles), as well as their unaffected family members. The information helps researchers better understand these conditions and track how they progress over time.
Rochester, New YorkAges Any age
Hear when a new Facioscapulohumeral Muscular Dystrophy trial opens near Rochester, NY
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Facioscapulohumeral Muscular Dystrophy trials in other cities
Where these studies are running near Rochester
Institutions with a site for the recruiting facioscapulohumeral muscular dystrophy studies listed above.
- University of Rochester Medical Center · 3 studies
- University of Rochester
What taking part in a facioscapulohumeral muscular dystrophy study involves
A screening visit first
Before anything else, the study team checks whether you fit — usually a visit with some tests. You can stop at any point, and screening is typically free.
Care at a nearby site
Study visits happen at a clinic or hospital taking part. Many studies cover the cost of the study treatment and related visits, and some reimburse travel.
You stay in control
Taking part is voluntary and you can leave a study at any time, for any reason, without affecting your regular care.
The team decides eligibility
Our fit check is a helpful first read, not a decision. The study team makes the final call after reviewing your health history.
Looking wider? See all recruiting facioscapulohumeral muscular dystrophy studies in New York.
Common questions
- Are there facioscapulohumeral muscular dystrophy clinical trials near Rochester?
- Yes. We're currently tracking 4 recruiting facioscapulohumeral muscular dystrophy studies with a site near Rochester, each rewritten in plain language so you can see what it's testing and who it's for.
- How do I find out if I qualify for a facioscapulohumeral muscular dystrophy study near Rochester?
- Each study lists its eligibility rules — age, diagnosis, prior treatments. On every trial page we explain these in plain language and offer a short, optional pre-screen for a fit read. The study team makes the final decision.
- Do I have to live in Rochester to take part?
- Not necessarily. These studies have a site near Rochester, but eligibility is about your health, not your address — some people travel to take part, and a few studies reimburse travel. The study team can tell you what's required.
- Does it cost anything to join a facioscapulohumeral muscular dystrophy trial?
- Using Clin2 is always free. Many trials cover the study treatment and related visits; some reimburse travel. The study team explains exactly what's covered before you decide.
Not the right time?
New facioscapulohumeral muscular dystrophy studies open near Rochester regularly. Set up a health profile and we’ll quietly watch for studies that fit you and email you when one opens.