For patient advocacy organizations
Straight answers first. Everything else after.
Your community trusts you with the hardest moments of their lives, and you shouldn’t point them at a tool you haven’t vetted. This page answers what foundations ask us before anything else — how Clin2 works, how it makes money, and exactly what happens to patient information.
The questions foundations ask us — in writing, on the record
Do you sell patient data?
No. We do not sell patient data to pharmaceutical companies, insurers, data brokers, or anyone else. The only time information a patient gives us leaves Clin2 is when that patient explicitly asks to be considered for a specific study — then, with their recorded consent, their application goes to that study team and nowhere else.
How does Clin2 make money?
Study sponsors and research sites can pay for a dashboard on their own studies — how their listing performs, and de-identified, aggregate demand for their condition. Patients never pay, and the free search is the whole product for them.
How do you handle sensitive health information?
Eligibility answers are health data and are treated that way: consent is recorded in a versioned ledger before anything is collected, identifiable answers are stored separately from analytics and access-controlled, and patients can export or delete everything from their account page.
Where do the trial listings come from?
Every listing starts from the study’s official ClinicalTrials.gov record, synced nightly. We rewrite it in plain language — what the study involves, who can take part, where it runs — and link back to the registry record on every page.
What happens when a listing is wrong?
Study teams write to us about closed or out-of-date listings regularly, and it is the most useful mail we get. Corrections are reviewed by a person and published on the listing as attributed study-team notes. If your medical team spots an error — in a listing or in how we name your disease — tell us and we fix it.
Will you put our name on anything without asking?
No. We maintain condition pages built from the public registry, but we don’t present your organization as a partner, co-brand anything, or promote a page for your community until you have seen it and said yes. If you would rather we not host a community page at all, tell us and it comes down.
The longer versions live in our privacy policy and about page. If a question of yours isn’t answered here, ask it — the next version of this page will include it.
Ways your community can use Clin2
Point your community at the search
The simplest option: link to clin2.com or to your condition’s page. Every study for your disease, in plain language, with a short eligibility check on each listing. No agreement needed, nothing co-branded.
A page for your community
A dedicated page listing the recruiting studies for your condition, filterable by location — reviewed by you before it carries your name, and only promoted once you approve it.
A trial list on your own site
An embeddable, self-updating list of recruiting studies for your condition that lives on your website — so your members get current listings without your staff re-checking the registry.
Tell us what your families need
You know your disease better than any registry does — the right name for it, the studies that matter, what a listing has to explain. That input costs nothing to give and improves the search for every patient with your condition.
Vet us properly.
Ask the hard questions, bring your medical team, and take your time. Nothing carries your name until you’ve approved it — and “no” is a complete answer we’ll respect.
Email Robert directlyYou’ll get the founder, not a queue.