Improve support after genetic cancer risk testing for young adults
Part of Cancer, Genetic & congenital clinical trials.
This study tests better ways to manage information and support for people ages 18–39 after they’ve had genetic testing for cancer risk. It focuses on those who received results showing a possible cancer-risk gene change, and it includes both patients and the clinicians who care for them.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You are 18 to 39 years old (inclusive).
- You had genetic testing for cancer risk and were told you have a gene variant labeled pathogenic or a VUS (a “variant of uncertain significance”).
- You already received your genetic test results from the clinical team.
- You are receiving care at Dana-Farber Cancer Institute.
- You are not in active cancer treatment when they contact you.
- You can read and speak English.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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