Testing a well-being questionnaire for people with FMF
Part of Genetic & congenital, Pain clinical trials.
This study tests a questionnaire called the BETY-BQ to see if it is a good tool for measuring the well-being and quality of life of people with FMF. By answering the questions, you help make this tool more reliable for future patients.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You have been diagnosed with Familial Mediterranean Fever (FMF).
- You are 18 years old or older.
- You can read and are willing to sign a consent form to take part.
- You do not have a serious mental health condition.
- You do not have cancer or a history of cancer.
- You have not had problems with blood flow in your limbs or nerve damage.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
Similar studies
Other trials that look related to this one.
This study looks at how well and safely different real-world treatments work for people with Familial Mediterranean Fever (FMF). It aims to find which medicines help best for this inherited inflammatory disorder.
This study compares physical activity levels in teenagers with familial Mediterranean fever (FMF), a condition causing repeated fevers and inflammation, to healthy teens. The goal is to understand how the disease affects daily movement and to guide better care.
This study tests whether a mobile app can help monitor infections in children and teenagers with Familial Mediterranean Fever (FMF). It aims to make it easier for families to track symptoms from home.
This study looks at what makes it hard for people with Familial Mediterranean Fever (an inherited condition that causes fever and inflammation) to be physically active. By understanding these barriers, doctors may be able to help patients stay active and improve their well-being.
This study compares two types of exercise programs for teenagers with Familial Mediterranean Fever (FMF). One program uses structured muscle-strengthening moves, and the other uses fun video games that get you moving. The goal is to see which helps teens feel better and stay active.
This study compares two ways of doing rehabilitation exercises at home using video calls: one where you do exercises in real-time with a therapist, and one where you get a video to follow on your own. It aims to see which method works better for young people with FMF.
Hear when a new Familial Mediterranean Fever trial opens
We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.