Quality of life in women with MRKH syndrome
Part of Genetic & congenital, Women’s health & pregnancy clinical trials.
This study tracks quality of life and follow-up care in women with Mayer-Rokitansky-Küster-Hauser (MRKH) syndrome, a condition where the uterus and upper vagina are underdeveloped or absent. It compares their experiences to women without MRKH to improve care.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You are a woman between 18 and 49 years old
- You have a confirmed diagnosis of MRKH syndrome
- You were told about your diagnosis more than one year ago
- You receive care from a specialist MRKH center (CRMR PGR)
- You have French health insurance and can speak French fluently
- You are able to understand and fill out questionnaires
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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