Clinical trials
Long Term Follow-Up clinical trials
Below are recruiting long term follow-up clinical trials, each written for real people, not researchers. We’re tracking 243 recruiting studies, each written for real people, not researchers, below.
Recruiting studies
- NCT07313878Recruiting
Kidney health study in young leukemia patients using ultrasound
This study tests whether a special ultrasound technique can detect early kidney damage in children and teens with acute lymphatic leukemia, before standard tests show any problems.
Erlangen, BaveriaAges 3–17 - NCT06116110Recruiting
Long-term follow-up after gene therapy treatment
This study is a long-term follow-up for people who previously received a gene therapy treatment called zamtocabtagene autoleucel in a Miltenyi Biomedicine-sponsored clinical study. It helps researchers monitor your health over time after the treatment.
Gilbert, ArizonaAges 18 years+ - NCT05296447Enrolling by invitationPhase 2
Long-term safety study for diabetic retinopathy gene therapy
This study follows people who already received an injection of RGX-314 (an experimental gene therapy) in a previous clinical trial for diabetic retinopathy, with or without swelling in the macula. It checks the long-term safety and how the treatment works over time.
Phoenix, ArizonaAges Any age - NCT06701201Enrolling by invitation
Long-term follow-up for SynKIR CAR T cell patients
This study monitors participants who have received a SynKIR CAR T cell treatment in a past Verismo Therapeutics trial. It aims to track long-term health and safety outcomes over time.
Denver, ColoradoAges 18 years+ - NCT05697861Enrolling by invitation
Follow-up study for people previously treated with NTLA-2001
This study checks how people are doing long-term after receiving NTLA-2001 in an Intellia clinical trial. If you previously took part and agree to be followed, this may help the researchers understand lasting safety and effects.
ParisAges 18 years+ - NCT07720349Recruiting
Digital follow-up for heart disease patients
This trial tests a digital tool to monitor patients after a heart attack or stent procedure, using a smartphone or tablet to improve long-term care.
ArendalAges 18 years+ - NCT03435796RecruitingPhase 2/Phase 3
Follow-up for people treated with gene-modified T cells
This study is a long-term check-in for people who previously received gene-modified T-cell infusions in a related Celgene/Juno/BMS trial. It helps researchers track safety and long-term effects over time.
Birmingham, AlabamaAges Any age - NCT07146100Recruiting
Long-term follow-up after AHB-137 treatment for hepatitis B
This study follows participants with chronic hepatitis B who previously responded to the drug AHB-137. The goal is to track long-term health and safety after their treatment.
Chongqing, Chongqing MunicipalityAges 18 years+ - NCT03830229Recruiting
Long-term follow-up for people with BAP1 mutations
This study follows people with a harmful (deleterious) BAP1 gene change to learn how it affects health over time. It may help researchers better understand mesothelioma risk and the long-term outcomes for families with this genetic mutation.
Bethesda, MarylandAges 2 years+ - NCT06298630Recruiting
Long-term study of BRL-101 for transfusion-dependent beta-thalassemia
This study follows patients who have already been treated with BRL-101 for transfusion-dependent beta-thalassemia. Its goal is to track long-term outcomes and safety.
Guangzhou, GuangdongAges 3–35 - NCT07110454Recruiting
Long-term follow-up study for epilepsy monitoring implant
This study follows people who previously enrolled in the DETECT study and had a Minder device implanted to monitor brain activity. The goal is to see how the device performs over a longer period of time.
Phoenix, ArizonaAges 18–75 - NCT03190837Recruiting
Long-term study for people with Gaucher disease
This study is designed to learn what happens over time in people who have Gaucher disease. It may help researchers understand the long-term effects of the condition and improve future care.
Durham, North CarolinaAges Any age - NCT03348501Recruiting
MEN1 monitoring study for people in France
This study follows people with Multiple Endocrine Neoplasia type 1 (MEN1) over time, including those with symptoms, certain isolated hormone gland problems, and people without symptoms who have the MEN1 gene change. It may help doctors learn how MEN1 starts and progresses so care can be better timed and personalized.
DijonAges Any age - NCT03831958Recruiting
Follow-up study of children cured of Cushing disease
This study checks long-term health in people who were treated successfully for Cushing disease when they were under 21. It also collects information from family members to study genetic links to pituitary tumors.
Bethesda, MarylandAges 2–90 - NCT07700966Recruiting
Long-term safety registry for EB treatment
This study follows patients who have already received a gene therapy treatment called prademagene zamikeracel for a severe skin condition called recessive dystrophic epidermolysis bullosa (RDEB). The goal is to track long-term safety and health outcomes after treatment.
Palo Alto, CaliforniaAges Any age - NCT04917887Recruiting
Gene therapy long-term follow-up for Krystal Biotech patients
This study follows people who previously received a gene therapy from Krystal Biotech to better understand long-term safety and outcomes. If you already had their gene therapy before and you can keep follow-up appointments, you may be able to join.
Rancho Santa Margarita, CaliforniaAges 6 months+ - NCT05093881Recruiting
Follow-up study for people treated for alcoholic liver scarring
This study checks on people who previously received Cellgram-LC for alcohol-related liver cirrhosis (liver scarring) in an earlier trial. It helps researchers learn long-term safety and outcomes after that treatment.
Bucheon-siAges Any age - NCT05377307Recruiting
Long-term follow-up for gene-edited immune cell therapy
This study checks how people are doing years after receiving a specific company’s gene-edited immune cell treatment. It helps researchers learn about long-term safety and health outcomes.
Kaohsiung, TaiwanAges Any age - NCT05596344Recruiting
Long-term check-in for anxiety and depression in cancer patients
This study will follow people with cancer over time to learn how anxiety and depression change. It may help doctors understand what support patients need and when.
Zhengzhou, HenanAges Any age - NCT05641961Recruiting
Mobile app for childhood cancer survivors’ long-term follow-up
This study tests a smartphone or tablet app that helps childhood cancer survivors (or their caregivers) manage long-term follow-up care. If you attend the UCSF Survivorship Clinic, the app may make it easier to understand what care you need and stay on track.
San Francisco, CaliforniaAges Any age - NCT05713214Recruiting
Long-term follow-up after a gene-modified cell treatment
This study checks long-term health after receiving a gene-modified cell therapy through a St. Jude study. It helps doctors understand the treatment’s lasting effects and safety over time.
Memphis, TennesseeAges Any age - NCT05822427Recruiting
Long-term follow-up for people who received azer-cel
This study checks how people do over a longer period after receiving azer-cel in an Imugene trial. It helps doctors understand long-term safety and health outcomes, even if you are feeling well now.
Culver City, CaliforniaAges 18 years+ - NCT05918523Recruiting
Long-term follow-up for people treated with REACT
This study checks long-term health outcomes in people who previously received a treatment called REACT for chronic kidney disease. It may help doctors understand how safe and effective REACT is over time.
Meridian, IdahoAges 30–80 - NCT06064825Recruiting
Long-term follow-up for TREOCAPA study children
This study is a long-term check-up for children who were in the TREOCAPA trial. It follows their health and development for about 2 years after they were in the original study.
AngersAges 1.9 years–2.3 years
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Common questions
- Are there clinical trials for long term follow-up?
- Yes. Clin2 currently lists 243 recruiting long term follow-up studies from the U.S. registry, each rewritten for real people, not researchers, so you can see what it’s testing and who it’s for.
- How do I know if I qualify for a long term follow-up trial?
- Each study lists its eligibility criteria — rules about age, diagnosis, and prior treatments. On every Clin2 trial page we explain these in words written for real people and offer a short, optional pre-screen for a fit read. The study team makes the final decision.
- Does it cost anything to join a long term follow-up trial?
- Using Clin2 is always free. Many trials cover the cost of the study treatment and related visits; some reimburse travel. The study team explains exactly what’s covered before you decide.
Related conditions
Clin2 helps you find and understand clinical trials and does not provide medical advice. Study data comes from ClinicalTrials.gov. Talk with your doctor about whether a specific trial is right for you.