Clinical trials · Kansas City, MO
Myotonic Dystrophy 1 clinical trials in Kansas City
We’re tracking 5 recruiting myotonic dystrophy 1 studies with a site in or near Kansas City — including Phase 1/Phase 2 and Phase 3 studies, each written for real people, not researchers.
Recruiting studies near Kansas City
- NCT07008469Enrolling by invitationPhase 3
Long-term safety study of del-desiran for DM1
This study tests whether the drug del-desiran continues to be safe and effective for people with DM1 (myotonic dystrophy type 1) after they complete an earlier study. You'll receive the drug and have regular check-ups to see how you're doing.
Kansas City, KansasAges 16 years+ - NCT06747884Recruiting
Study for children with myotonic dystrophy
This study looks at how to best measure muscle health and function in children with myotonic dystrophy. It may help prepare for future treatment trials.
Kansas City, KansasAges 3–17 - NCT03981575Recruiting
Biomarker and health marker study in myotonic dystrophy type 1
This study measures physical and lab “health markers” in people with myotonic dystrophy type 1 (DM1) to better understand how the disease changes over time. Some participants may also have a muscle biopsy to study tissue differences.
Kansas City, KansasAges 18–70 - NCT06300307RecruitingPhase 1/Phase 2
Study of ATX-01 for Myotonic Dystrophy Type 1
This trial tests an experimental drug called ATX-01 for people with myotonic dystrophy type 1 (DM1), a condition that causes muscle weakness and stiffness. The study aims to see if ATX-01 can help reduce symptoms like muscle stiffness (myotonia) and improve daily function.
Fairway, KansasAges 18–64 - NCT05224778Recruiting
Study for young children with neonatal myotonic dystrophy type 1
This study looks at measurements and child-focused outcomes in babies and toddlers with myotonic dystrophy type 1 (DM1) that started in the newborn period. It may help researchers better track how the condition affects children and evaluate care plans more accurately.
Fairway, KansasAges Up to 4.9 years
Hear when a new Myotonic Dystrophy 1 trial opens near Kansas City, MO
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Myotonic Dystrophy 1 trials in other cities
Where these studies are running near Kansas City
Institutions with a site for the recruiting myotonic dystrophy 1 studies listed above.
- University of Kansas Medical Center · 3 studies
- Kansas University Medical Center · 2 studies
What taking part in a myotonic dystrophy 1 study involves
A screening visit first
Before anything else, the study team checks whether you fit — usually a visit with some tests. You can stop at any point, and screening is typically free.
Care at a nearby site
Study visits happen at a clinic or hospital taking part. Many studies cover the cost of the study treatment and related visits, and some reimburse travel.
You stay in control
Taking part is voluntary and you can leave a study at any time, for any reason, without affecting your regular care.
The team decides eligibility
Our fit check is a helpful first read, not a decision. The study team makes the final call after reviewing your health history.
Common questions
- Are there myotonic dystrophy 1 clinical trials near Kansas City?
- Yes. We're currently tracking 5 recruiting myotonic dystrophy 1 studies with a site near Kansas City, each rewritten in plain language so you can see what it's testing and who it's for.
- How do I find out if I qualify for a myotonic dystrophy 1 study near Kansas City?
- Each study lists its eligibility rules — age, diagnosis, prior treatments. On every trial page we explain these in plain language and offer a short, optional pre-screen for a fit read. The study team makes the final decision.
- Do I have to live in Kansas City to take part?
- Not necessarily. These studies have a site near Kansas City, but eligibility is about your health, not your address — some people travel to take part, and a few studies reimburse travel. The study team can tell you what's required.
- Does it cost anything to join a myotonic dystrophy 1 trial?
- Using Clin2 is always free. Many trials cover the study treatment and related visits; some reimburse travel. The study team explains exactly what's covered before you decide.
Not the right time?
New myotonic dystrophy 1 studies open near Kansas City regularly. Set up a health profile and we’ll quietly watch for studies that fit you and email you when one opens.