Clinical trials · Boston, MA
Myotonic Dystrophy clinical trials in Boston
We’re tracking 6 recruiting myotonic dystrophy studies with a site in or near Boston — including Phase 1/Phase 2 and Phase 3 studies, each written for real people, not researchers.
Recruiting studies near Boston
- NCT07008469Enrolling by invitationPhase 3
Long-term safety study of del-desiran for DM1
This study tests whether the drug del-desiran continues to be safe and effective for people with DM1 (myotonic dystrophy type 1) after they complete an earlier study. You'll receive the drug and have regular check-ups to see how you're doing.
Boston, MassachusettsAges 16 years+ - NCT06716931Recruiting
Exercise study for myotonic dystrophy type 2
This study tests if a structured exercise program is safe and helpful for people with myotonic dystrophy type 2 (DM2). It aims to improve strength and daily function.
Boston, MassachusettsAges 18–70 - NCT05019625Recruiting
Study samples for biomarkers in myotonic dystrophy
This study collects blood and, for some people, muscle tissue to look for signs (biomarkers) that can help track and better understand myotonic dystrophy. You may help by providing samples and basic muscle function testing, depending on your age and condition type.
Boston, MassachusettsAges 5 years+ - NCT05020002Recruiting
Checking RNA markers in blood and muscle in muscle disease
This study looks for tiny RNA “signals” in blood (and sometimes urine) and compares them with muscle samples in people with myotonic dystrophy (DM1 or DM2) and healthy controls. The goal is to find biomarkers that may help track the disease over time.
Boston, MassachusettsAges 5 years+ - NCT06075693Recruiting
Spinal fluid markers for myotonic dystrophy
This study looks for markers in spinal fluid that could help doctors better understand myotonic dystrophy type 1 (DM1). It involves a spinal tap and MRI scan. It may help people with DM1 and healthy volunteers learn more about the condition.
Boston, MassachusettsAges 18 years+ - NCT06185764RecruitingPhase 1/Phase 2
VX-670 for adults with myotonic dystrophy type 1
This trial tests an experimental drug called VX-670 for adults with myotonic dystrophy type 1 (DM1), a genetic muscle disease. It aims to see if the drug is safe and can help improve symptoms.
Boston, MassachusettsAges 18–64
Hear when a new Myotonic Dystrophy trial opens near Boston, MA
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Myotonic Dystrophy trials in other cities
Where these studies are running near Boston
Institutions with a site for the recruiting myotonic dystrophy studies listed above.
- Massachusetts General Hospital · 4 studies
- Beth Israel Deaconess Medical Center · 2 studies
- Boston Children's Hospital · 2 studies
- Brigham and Women's Hospital
What taking part in a myotonic dystrophy study involves
A screening visit first
Before anything else, the study team checks whether you fit — usually a visit with some tests. You can stop at any point, and screening is typically free.
Care at a nearby site
Study visits happen at a clinic or hospital taking part. Many studies cover the cost of the study treatment and related visits, and some reimburse travel.
You stay in control
Taking part is voluntary and you can leave a study at any time, for any reason, without affecting your regular care.
The team decides eligibility
Our fit check is a helpful first read, not a decision. The study team makes the final call after reviewing your health history.
Looking wider? See all recruiting myotonic dystrophy studies in Massachusetts.
Common questions
- Are there myotonic dystrophy clinical trials near Boston?
- Yes. We're currently tracking 6 recruiting myotonic dystrophy studies with a site near Boston, each rewritten in plain language so you can see what it's testing and who it's for.
- How do I find out if I qualify for a myotonic dystrophy study near Boston?
- Each study lists its eligibility rules — age, diagnosis, prior treatments. On every trial page we explain these in plain language and offer a short, optional pre-screen for a fit read. The study team makes the final decision.
- Do I have to live in Boston to take part?
- Not necessarily. These studies have a site near Boston, but eligibility is about your health, not your address — some people travel to take part, and a few studies reimburse travel. The study team can tell you what's required.
- Does it cost anything to join a myotonic dystrophy trial?
- Using Clin2 is always free. Many trials cover the study treatment and related visits; some reimburse travel. The study team explains exactly what's covered before you decide.
Not the right time?
New myotonic dystrophy studies open near Boston regularly. Set up a health profile and we’ll quietly watch for studies that fit you and email you when one opens.