Italian registry for people with repaired Tetralogy of Fallot

This is a national registry that collects information about people with Tetralogy of Fallot who have an implantable defibrillator. It helps researchers better understand outcomes and care needs in this specific group.

This study looks at how a transcatheter pulmonary valve replacement works in people with repaired Tetralogy of Fallot or double outlet right ventricle. The goal is to better understand the heart’s anatomy and how it may affect the valve procedure.

This study looks at how blood flow and heart rhythm may affect exercise ability in people born with certain heart defects that have been repaired or treated. It uses a specialized heart MRI and ultrasound measurements to better understand these problems and their causes.

This study compares doing a valve replacement earlier versus later in people born with Tetralogy of Fallot who already had heart surgery as babies. It may help decide the safest timing to protect heart function, especially right-sided pumping and valve leakage.

This study looks at quality of life in adults who had surgery for tetralogy of Fallot (a heart condition). It uses heart MRI scans to see how well the heart muscle moves and how that relates to daily life.

This study validates a new method to locate abnormal heart rhythms using ECG (a simple heart recording) in adults who had tetralogy of Fallot surgery as children. Researchers will compare the new mapping technique during a scheduled heart procedure to improve how doctors find and treat dangerous rhythms in the future.