Italian registry for people with repaired Tetralogy of Fallot

This is a national registry that collects information about people with Tetralogy of Fallot who have an implantable defibrillator. It helps researchers better understand outcomes and care needs in this specific group.

This study looks at how a transcatheter pulmonary valve replacement works in people with repaired Tetralogy of Fallot or double outlet right ventricle. The goal is to better understand the heart’s anatomy and how it may affect the valve procedure.

This study looks at how blood flow and heart rhythm may affect exercise ability in people born with certain heart defects that have been repaired or treated. It uses a specialized heart MRI and ultrasound measurements to better understand these problems and their causes.

This study compares doing a valve replacement earlier versus later in people born with Tetralogy of Fallot who already had heart surgery as babies. It may help decide the safest timing to protect heart function, especially right-sided pumping and valve leakage.

This study collects information from adults with congenital heart defects who are having certain heart procedures. It helps doctors learn more about how these treatments work in real life, which may improve care for others.

This study looks at how your quality of life is affected after surgery for Tetralogy of Fallot, and whether heart muscle function measured on an MRI can predict how you feel. If you join, researchers will use your routine MRI results to see how well your heart is working and connect that to your daily life.