Helps teens with inherited metabolism conditions move to adult care
Part of Genetic & congenital, Hormones & metabolism clinical trials.
This study tests a targeted approach to help teenagers with inherited metabolism conditions successfully transfer from children’s to adult healthcare. It may help families feel more confident and reduce problems during the handoff to adult services.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You are at least 14 years old
- You have an inherited (genetic) metabolism condition being followed in a specialized metabolic clinic
- You need specialized metabolism care from adult doctors
- Your condition has at least one reliable blood or physical “marker” doctors can measure
- You can communicate in German well enough to understand and take part
- You are not in an end-of-life situation
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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