Study outcomes in children with Hirschsprung’s disease
Part of Digestive system, Genetic & congenital clinical trials.
This study looks at long-term health and development outcomes in children who were diagnosed and treated for Hirschsprung’s disease or anorectal malformations. It uses both numbers and interviews to understand what happens over time after treatment, helping families and clinicians plan better care.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You’re a child who was diagnosed with Hirschsprung’s disease and had confirmation from a tissue test (biopsy).
- The Hirschsprung’s diagnosis happened after 1991, and the child was treated at one of the study centers.
- You’re also eligible if the child has an anorectal malformation diagnosed by the exact anatomy (position vs. the external sphincter and size).
- Most of the child’s initial treatment and follow-up care were done at one of the study centers.
- The child does not have a “funnel anus.”
- The person taking part is able to consent (adults who cannot consent for themselves are excluded).
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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