Measuring pain with a finger device in NF1
Part of Brain & nervous system, Cancer, Genetic & congenital, Pain clinical trials.
This study tests a new way to measure pain and other sensations in people with NF1 using a device that clips onto a finger or toe. The device looks at how your pupil reacts to mild pulses, which may help doctors better understand your pain.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You must have a diagnosis of NF1 (from a doctor or genetic test).
- You must be at least 1 year old.
- You need to have at least one finger or toe without any open cuts or sores.
- You or your caregiver must speak English or Spanish (if the child is under 5, the caregiver must speak English).
- For children under 18, a caregiver must be willing to help with the study tasks and device.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
Similar studies
Other trials that look related to this one.
This study talks with people who have NF1 (and caregivers of children with NF1) about how visible tumors affect them. The goal is to create questionnaires that measure these concerns, which could lead to better support and treatments.
This study looks for better ways to measure how much tumor activity people with neurofibromatosis type 1 (NF1) have over time. The goal is to develop “biomarkers,” which are test results that may help doctors track disease more easily.
This study is looking for adults with NF1 who have had a plexiform neurofibroma. It aims to find better ways to detect tumors early, which could help with treatment decisions.
This study checks whether patient surveys (questionnaires) can reliably measure symptoms and pain in people with NF1 who have plexiform neurofibromas. It helps create better tools for tracking how you feel and how treatments may affect quality of life.
This study tracks people with NF1 to watch for when benign nerve tumors turn cancerous. It uses regular MRI scans to catch changes early, which could help guide treatment decisions.
This study looks at how children and teens experience pain after surgery or during a bone marrow transplant. It aims to better understand acute pain, which is short-term pain that goes away as the body heals.
Hear when a new Neurofibromatosis Type 1 trial opens
We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.