Study of SITRAME syndrome in a national patient group
Part of Immune system & allergy clinical trials.
This trial is creating a national group of people with SITRAME syndrome to better understand the condition and its effects. If you have SITRAME, joining helps researchers learn more about your symptoms and how to improve care.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You must be 18 or older.
- You have SITRAME syndrome with specific signs: at least one episode of high CRP during a skin flare, a rash on your trunk that comes and goes in the same spots for less than 8 days, and you've had 3 or more separate episodes.
- You also have at least one of these: fever during flare-ups, flare-ups triggered by infections or vaccines or hard exercise, feeling very tired during or after flare-ups, or a bumpy rash.
- You do not have other known autoinflammatory diseases, active cancer, or an active autoimmune disease.
- You agree to participate and are not under guardianship or in a situation where you cannot freely consent.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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