Family well-being & independence in rare genetic disorders
Part of Genetic & congenital clinical trials.
This study looks at how a child's ability to function independently affects the well-being of their family. It is for caregivers of young children (0–4 years) with rare genetic disorders who have been in physiotherapy for at least 6 months.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You are a caregiver of a child aged 0 to 4 years old.
- Your child has been diagnosed with a rare genetic disorder.
- Your child has been receiving physiotherapy for at least 6 months.
- You can read and understand Turkish to fill out questionnaires.
- You do not have cognitive or language problems that would prevent you from answering questionnaires.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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