Genome surgery biobank and registry study
Part of Genetic & congenital clinical trials.
This study collects information and samples from people with genetic conditions to help researchers learn more and develop new treatments. You can participate even if you are pregnant, a child, or a family member of someone with a genetic condition.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You have a condition that is genetic or might be genetic
- You are a patient at UCSF or you agree to have your case discussed by a team of experts
- You can join even if you are a child, pregnant, or a family member of someone in the study
- You must give permission (informed consent) to be in the registry and biobank part
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
Similar studies
Other trials that look related to this one.
This study creates a collection of tissue, fluid, and blood samples from people with or at risk for hereditary cancers. These samples help researchers learn more about how tumors grow, respond to treatment, and might be used to develop new therapies.
This is an observational study that collects health and family history information to see how advanced data analysis can help people with genetic conditions. It may involve website forms, optional conversations, and sometimes an NIH visit, depending on your situation.
This study collects and stores DNA samples and related health information from people of all ages. It helps researchers understand childhood diseases better and may support future discoveries and treatments.
This study builds a large DNA and health information “biobank” from adults who visit Intermountain Health. It may help researchers understand how genes relate to health and disease by comparing “healthy” people with people who have medical conditions.
This study is for children and teens (ages 6 to 18) who may have a genetic condition from a parent or an unexplained health problem. It tests a new approach to find hidden risks and help families understand their health better.
This study is for adults who have already had their entire genetic code read as part of certain other research studies. It will use that genetic information to learn more about genes and health, and it requires that you agreed earlier to be contacted for more research.
Hear when a new Any Conditions That Are Genetic or Suspected to be Genetic in Origin trial opens
We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.