Growing Up With Severe Hemophilia: A Follow-Up Study
Part of Blood & lymphatic, Genetic & congenital clinical trials.
This study follows young adults with severe hemophilia who joined the TRANSHEMO project as teenagers. It looks at how the transition to adulthood affects their health and daily life, and aims to improve care for others like them.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You took part in the earlier TRANSHEMO study as a teenager.
- You are now between 20 and 29 years old.
- You have severe hemophilia A or B.
- You are enrolled in the FranceCoag national hemophilia registry.
- You have received the study information sheet and agree to take part.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
Similar studies
Other trials that look related to this one.
This study looks at the experiences of people with haemophilia, their caregivers, and doctors in Asia and the Pacific. The goal is to understand current care and find ways to improve it. You may be asked about your treatment and daily life.
This study uses ultrasound to check the health of joints in adults with mild hemophilia. It may help doctors understand how to better care for people with this condition.
This study collects information from people with hemophilia about how treatments and daily life affect them. It uses your answers to improve patient-focused care and understand what challenges matter most.
This study looks at how prophylactic treatment for hemophilia affects your daily life, sleep, and feelings about your health. It compares different types of clotting factor concentrates to see if one is easier to manage than the other.
This study checks how people with severe hemophilia A are doing over time after joining a previous BioMarin study of BMN 270. It helps researchers understand long-term safety and outcomes and may support your ongoing care plan.
This study compares how two different hemophilia A treatments affect bone strength and health in men over time. Researchers will track bone density and collect blood samples to understand whether one treatment protects bones better than the other.
Hear when a new Haemophilia trial opens
We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.