Adrenal and Bone Health in Children With Spinal Muscular Atrophy
Part of Brain & nervous system clinical trials.
This study looks at how spinal muscular atrophy (SMA)—a condition that weakens muscles—affects the adrenal glands (which make hormones) and bones in children and young people. Researchers will use existing health information to understand these complications better and help improve care.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You or your child must be registered on the paediatric SMA REACH UK database
- You or your child must have been consented (agreed to participate) by May 1, 2025
- If you are 16 or older, you must have agreed again to participate after turning 16
- Your health information will be reviewed from the SMA REACH UK database
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
Similar studies
Other trials that look related to this one.
This study uses wearable devices (like smartwatches or activity trackers) to monitor movement and motor development in young children with spinal muscular atrophy (SMA), a rare genetic condition affecting muscle strength. The goal is to see if wearables can track disease progression and treatment response better than traditional clinic visits.
This study uses a questionnaire to understand how young people with spinal muscular atrophy experience moving from one school or education level to another. The goal is to help make these transitions easier for others in the future.
This research study asks parents and caregivers about their lived experiences caring for children with SMA type 1 (a rare genetic condition affecting muscle strength), particularly around feeding and communication. Your honest feedback helps doctors and nurses better understand and support families like yours.
This trial is a registry that collects health information from people with spinal muscular atrophy (SMA). It helps researchers understand the condition better and may support future studies and treatments.
This study tests a virtual reality rehabilitation program for young people with SMA (spinal muscular atrophy, a genetic muscle-weakening condition). Researchers want to understand if VR-based exercises can help improve function and quality of life.
This study is looking for children and teens with spinal muscular atrophy (SMA) who are already on a treatment like Spinraza, Evrysdi, or Zolgensma. The goal is to understand different forms of SMA and how the treatment affects them over time.
Hear when a new SMA - Spinal Muscular Atrophy trial opens
We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.