Online skill-building program for teens and young adults with genetic conditions
Part of Genetic & congenital clinical trials.
This trial tests I-TOPS, an online program designed to help teenagers and young adults with genetic syndromes build practical life skills. You and a parent or caregiver would participate together from home using a computer and internet connection.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You have been diagnosed with a genetic syndrome (a condition you were born with caused by genes)
- You are between 11 and 39 years old
- You have a computer and reliable internet access at home
- You and your parent/caregiver know how to use email, browse the internet, and join video calls
- A parent, caregiver, or guardian lives with you and can take part in the program with you
- You do not have severe intellectual disability that would prevent you from participating in an online program
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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