Online skill-building program for teens and young adults with genetic conditions
Part of Genetic & congenital clinical trials.
This trial tests I-TOPS, an online program designed to help teenagers and young adults with genetic syndromes build practical life skills. You and a parent or caregiver would participate together from home using a computer and internet connection.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You have been diagnosed with a genetic syndrome (a condition you were born with caused by genes)
- You are between 11 and 39 years old
- You have a computer and reliable internet access at home
- You and your parent/caregiver know how to use email, browse the internet, and join video calls
- A parent, caregiver, or guardian lives with you and can take part in the program with you
- You do not have severe intellectual disability that would prevent you from participating in an online program
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
Similar studies
Other trials that look related to this one.
This study tests a program called 'Regulating Together' for children with tuberous sclerosis complex who have behavior challenges. The program is done online with your child and you, and may help improve self-control and reduce outbursts.
This trial tests an online program designed to help autistic adults cope with everyday challenges and emotional distress. It may provide tools to improve well-being without needing in-person visits.
This trial offers an online program to help parents learn ways to support their young child who has just been diagnosed with autism. It aims to provide practical guidance shortly after the diagnosis.
This study tests a virtual (online) program to help teens with lupus improve thinking and daily life skills. It is designed for youth ages 13–18 with childhood-onset lupus.
This study tests a web-based program with brief coaching to help parents of children with disabilities manage stress and emotions. Participation involves using the program and talking with a coach, and you must have internet access and a child who visits a clinic regularly.
This trial tests an intensive therapy program designed to help children with brain-based conditions like cerebral palsy or autism improve their skills in movement, thinking, and daily activities. The program runs for 2 weeks with daily sessions, and researchers will check for changes in your child's abilities.
Hear when a new Genetic Syndrome trial opens
We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.