Sharing your family’s story through photos
This study looks at how sharing photos and stories can help parents of children with complex medical needs feel supported. It does not test a medicine or device. It is a research study to help understand your family's experience.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You are the parent or legal guardian of a child treated at a study site for a complex condition.
- Your child is between 3 months and 25 years old.
- Your child has been home from the hospital before.
- Your child's care team expects them to live more than 6 months.
- You speak English or Spanish and have no major health issues that would prevent you from taking part.
- No active child protective services involvement with your family.
- Your child is followed by the complex care or palliative care team.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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