Photo journal for parents of children with complex health needs
This study explores using photos and stories to help parents share their family's experience. It aims to understand and support families caring for a child with a complex medical condition.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You are the parent or legal guardian of a child receiving care for a complex medical condition.
- Your child is between 3 months and 25 years old.
- Your child has been home from the hospital at least once.
- Your child's life expectancy is more than 6 months.
- You speak English or Spanish as your preferred language.
- You are not involved with child protective services.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
Similar studies
Other trials that look related to this one.
This study looks at the experiences of brothers and sisters who help care for a sibling with complex medical needs. It aims to understand how to better support these young caregivers.
This trial tests a program that helps family caregivers find meaning and solve problems related to caring for a child with complex medical conditions. It aims to improve caregivers' well-being and coping.
This study tests a “hospital-to-home” transition plan to help children with complex medical needs safely manage care at home after discharge. You may be randomly placed into the program or usual care to see which better supports families.
This trial offers nurse-led home visits and phone support to help parents manage symptoms for children who need breathing assistance (like oxygen or a ventilator). It aims to make daily care easier and improve your child's comfort.
This study aims to better understand the complex needs of children with life-limiting conditions and the support they receive. It involves interviews and workshops with children, parents, and professionals to improve care.
This study tests a journal to help parents and caregivers stay involved while their child is in the pediatric intensive care unit (PICU). It aims to see if the journal improves communication and engagement.
Hear when a new Family Caregivers trial opens
We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.