Clinical trials · Rochester, NY
Congenital Myotonic Dystrophy clinical trials in Rochester
We’re tracking 4 recruiting congenital myotonic dystrophy studies with a site in or near Rochester — including Phase 2/Phase 3 studies, each written for real people, not researchers.
Recruiting studies near Rochester
- NCT07630389Recruiting
Remote monitoring for childhood myotonic dystrophy
This study uses video calls and online assessments to track how myotonic dystrophy (a muscle-weakening condition) affects children over time. Researchers will also look at genetic factors to better understand the disease and improve care.
Rochester, New YorkAges birth–17 years - NCT00082108Recruiting
Muscle Disease and Family Health Registry
This is a registry study that collects health information from people with myotonic dystrophy (a genetic muscle disease that causes weakness and stiffness) or facioscapulohumeral muscular dystrophy (a genetic condition affecting shoulder and face muscles), as well as their unaffected family members. The information helps researchers better understand these conditions and track how they progress over time.
Rochester, New YorkAges Any age - NCT05004129RecruitingPhase 2/Phase 3
Tideglusib for genetic childhood myotonic dystrophy
This trial studies how safe and effective tideglusib is for children and young adults with congenital or childhood-onset myotonic dystrophy type 1 (DM1). It may help researchers learn whether the medicine improves symptoms while tracking side effects closely.
Rochester, New YorkAges 6–45 - NCT05224778Recruiting
Study for young children with neonatal myotonic dystrophy type 1
This study looks at measurements and child-focused outcomes in babies and toddlers with myotonic dystrophy type 1 (DM1) that started in the newborn period. It may help researchers better track how the condition affects children and evaluate care plans more accurately.
Rochester, New YorkAges Up to 4.9 years
Hear when a new Congenital Myotonic Dystrophy trial opens near Rochester, NY
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Congenital Myotonic Dystrophy trials in other cities
Where these studies are running near Rochester
Institutions with a site for the recruiting congenital myotonic dystrophy studies listed above.
- University of Rochester Medical Center · 3 studies
- University of Rochester
What taking part in a congenital myotonic dystrophy study involves
A screening visit first
Before anything else, the study team checks whether you fit — usually a visit with some tests. You can stop at any point, and screening is typically free.
Care at a nearby site
Study visits happen at a clinic or hospital taking part. Many studies cover the cost of the study treatment and related visits, and some reimburse travel.
You stay in control
Taking part is voluntary and you can leave a study at any time, for any reason, without affecting your regular care.
The team decides eligibility
Our fit check is a helpful first read, not a decision. The study team makes the final call after reviewing your health history.
Looking wider? See all recruiting congenital myotonic dystrophy studies in New York.
Common questions
- Are there congenital myotonic dystrophy clinical trials near Rochester?
- Yes. We're currently tracking 4 recruiting congenital myotonic dystrophy studies with a site near Rochester, each rewritten in plain language so you can see what it's testing and who it's for.
- How do I find out if I qualify for a congenital myotonic dystrophy study near Rochester?
- Each study lists its eligibility rules — age, diagnosis, prior treatments. On every trial page we explain these in plain language and offer a short, optional pre-screen for a fit read. The study team makes the final decision.
- Do I have to live in Rochester to take part?
- Not necessarily. These studies have a site near Rochester, but eligibility is about your health, not your address — some people travel to take part, and a few studies reimburse travel. The study team can tell you what's required.
- Does it cost anything to join a congenital myotonic dystrophy trial?
- Using Clin2 is always free. Many trials cover the study treatment and related visits; some reimburse travel. The study team explains exactly what's covered before you decide.
Not the right time?
New congenital myotonic dystrophy studies open near Rochester regularly. Set up a health profile and we’ll quietly watch for studies that fit you and email you when one opens.