Remote monitoring for childhood myotonic dystrophy
Part of Bones, joints & muscles, Brain & nervous system, Genetic & congenital clinical trials.
This study uses video calls and online assessments to track how myotonic dystrophy (a muscle-weakening condition) affects children over time. Researchers will also look at genetic factors to better understand the disease and improve care.
Summary written for real people, not researchers, by Clin2.
Who can take part
- Child is between newborn and 17 years old
- Child has been diagnosed with congenital, childhood, or juvenile myotonic dystrophy type 1 (DM1)
- Family speaks English at home
- Parent or guardian can help with study visits and give permission
- Reliable wifi internet access at home for remote video assessments
- No other serious brain or nerve conditions (like cerebral palsy) that could affect muscle testing
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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