Diamond Blackfan Anemia Registry Study
Part of Blood & lymphatic clinical trials.
This study collects information from patients with Diamond Blackfan Anemia (DBA), a rare blood disorder that affects red blood cell production. By joining this registry, you help doctors better understand DBA and improve treatments for patients like you.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You have been diagnosed with Diamond Blackfan Anemia based on blood tests showing low red blood cells with few immature red cells in your bone marrow
- You do not have another bone marrow failure syndrome such as Fanconi anemia, dyskeratosis congenita, or Shwachman Diamond syndrome
- Your diagnosis is confirmed either by typical blood and bone marrow findings or by genetic testing showing a DBA gene mutation
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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