SUDC registry to study sudden unexplained child deaths
Part of Genetic & congenital, Heart & circulation clinical trials.
This registry collects information (and sometimes DNA) from families affected by sudden unexplained death, to help researchers learn possible underlying causes. If you qualify, you may be contacted about participating in a DNA study or completing family information.
Summary written for real people, not researchers, by Clin2.
Who can take part
- The person affected was aged 11 months to 18 years (for past cases)
- The death was sudden and unexplained after the initial evaluation, with full testing done
- The death must have been classified as sudden and unexplained (not explained by a clear cause)
- If DNA samples are available, parents and some close relatives may be asked to join the DNA portion
- Relatives (siblings or second-degree relatives) must have a history or current heart or nervous system (neurology) condition
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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