Registry and blood/tissue study for certain sudden heart death causes
Part of Blood & lymphatic, Genetic & congenital, Heart & circulation, Immune system & allergy clinical trials.
This study builds a registry and collection of samples to better understand families affected by sudden heart death and related heart rhythm problems that are not clearly caused by a heart attack. It may help researchers identify patterns and improve future care, and it offers a way for patients and families to contribute to research.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You have been diagnosed with a type of sudden heart-related death or serious rhythm condition not caused by a heart attack
- You (or your family) have been affected by SCD or SCA, such as fainting, seizures, or near-drowning with suspected heart muscle disease
- If you’re a family member: a close family member has primary heart muscle disease, like hypertrophic cardiomyopathy or idiopathic dilated cardiomyopathy, or arrhythmogenic cardiomyopathy
- The cause of the problem cannot already be clearly explained by something else like an earlier heart attack
- You must be willing to sign consent (or assent, if appropriate)
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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