Lynch syndrome study following people over time
Part of Cancer, Digestive system, Genetic & congenital, Hormones & metabolism clinical trials.
This study follows adults with Lynch syndrome (an inherited gene change) using regular questionnaires and tracking health over time. It may help researchers understand how the condition progresses and improve care for people with these gene mutations.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You have a confirmed inherited Lynch syndrome gene mutation (MLH1, MSH2, MSH6, PMS2, or EPCAM)
- You are between 18 and 80 years old
- You do not also have another inherited colon cancer syndrome (like FAP)
- You do not have inflammatory bowel disease (long-term bowel inflammation)
- You can speak Dutch and complete study questionnaires
- You are not terminally ill and can participate in questionnaires
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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