Registry for pregnancies with Ebstein and tricuspid valve issues
Part of Genetic & congenital, Heart & circulation clinical trials.
This registry collects information about pregnancies where the baby is diagnosed with Ebstein anomaly and/or tricuspid valve dysplasia. It helps doctors learn how these heart conditions affect pregnancies and outcomes, and can support better future care.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You are the mother (age 14–54) of a fetus diagnosed with Ebstein anomaly and/or tricuspid valve dysplasia
- The baby’s heart findings must involve the tricuspid valve without other major abnormal heart wiring (normal segmental anatomy with AV and VA concordance)
- The pregnancy can be enrolled at any week of pregnancy, up to delivery or pregnancy outcome
- The pregnancy can be a singleton or multiple gestation (twins or more)
- You can give consent at a participating study site
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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