Registry for pregnancies with Ebstein and tricuspid valve issues
Part of Genetic & congenital, Heart & circulation clinical trials.
This registry collects information about pregnancies where the baby is diagnosed with Ebstein anomaly and/or tricuspid valve dysplasia. It helps doctors learn how these heart conditions affect pregnancies and outcomes, and can support better future care.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You are the mother (age 14–54) of a fetus diagnosed with Ebstein anomaly and/or tricuspid valve dysplasia
- The baby’s heart findings must involve the tricuspid valve without other major abnormal heart wiring (normal segmental anatomy with AV and VA concordance)
- The pregnancy can be enrolled at any week of pregnancy, up to delivery or pregnancy outcome
- The pregnancy can be a singleton or multiple gestation (twins or more)
- You can give consent at a participating study site
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
Similar studies
Other trials that look related to this one.
This study collects information about people who are having a transcatheter tricuspid valve procedure (a heart valve treatment done through catheters rather than open-heart surgery). It may help doctors understand safety and outcomes better over time.
This trial is a national registry that collects information about people undergoing a minimally invasive tricuspid valve repair using a catheter. It helps doctors learn how this procedure is used and how patients do over time.
This study is a registry that collects data on patients who receive a new type of heart valve replacement for the tricuspid valve through a less invasive catheter procedure. Joining helps doctors learn more about how well this treatment works in real-world patients.
This trial is a registry that collects information on patients who have had a minimally invasive procedure to fix a leaky tricuspid valve. By joining, you help doctors learn more about how well these devices work over time.
This is a registry that collects information about people who have planned or recent right-heart valve procedures (such as tricuspid or pulmonary valve problems). It helps researchers understand what care is done and how patients do over time, which may improve future treatment planning.
This study tracks patients with weak heart pumps and leaky tricuspid valves (a valve on the right side of the heart) who receive a minimally invasive repair procedure. The goal is to understand how this treatment affects patients' heart function and quality of life over time.
Hear when a new Ebstein Anomaly trial opens
We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.