Registry for children with Noonan syndrome on growth hormone
Part of Bones, joints & muscles, Genetic & congenital, Heart & circulation, Skin clinical trials.
This trial is a real-world registry that collects information about children with Noonan syndrome who are treated with Norditropin (a growth hormone). It helps researchers understand how these children do over time in routine care.
Summary written for real people, not researchers, by Clin2.
Who can take part
- Your child has a diagnosis of Noonan syndrome (by doctor and/or genetic testing).
- Your child is receiving Norditropin already or is starting it soon.
- Your care team is part of the participating treatment centers.
- You, your child’s parent/guardian (LAR), and the treating doctor agree to use Norditropin before enrolling in the registry.
- You must agree to let the study team collect and use your child’s medical data.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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