Developing a questionnaire for Chiari malformation and syringomyelia
Part of Brain & nervous system, Genetic & congenital clinical trials.
This study is developing a new questionnaire to measure the symptoms and impact of Chiari malformation and syringomyelia. By participating, you can help create a better tool for doctors to understand and treat these conditions.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You are 18 years old or older.
- You have been diagnosed with Chiari malformation or syringomyelia by an MRI scan.
- You fall into one of three groups: Chiari only, syringomyelia only, or both Chiari and syringomyelia.
- You can understand French well enough to complete surveys and interviews.
- You are not pregnant or breastfeeding.
- You are able to give informed consent and are not under legal guardianship.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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