Familial high cholesterol registry
Part of Genetic & congenital, Hormones & metabolism clinical trials.
This registry study collects information from people with familial hypercholesterolemia (a genetic condition causing very high cholesterol) to better understand the disease and improve care. By participating, you help researchers learn more about this condition.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You have been diagnosed with familial hypercholesterolemia (a genetic condition that causes high cholesterol).
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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This registry collects information from people with inherited high cholesterol to better understand the condition and care needs. You may be invited to share blood and medical test results, especially your cholesterol and related health history.
This trial is a global registry that collects health and genetic information from people with familial hypercholesterolemia (FH) and sometimes from their relatives. The goal is to better understand FH and how it presents, which can help improve care for families affected by high cholesterol.
This trial focuses on people with familial hypercholesterolemia (FH), an inherited condition that causes very high cholesterol. It aims to better understand and manage severe cholesterol problems that raise heart risk, especially in families.
This trial is about helping families with familial hypercholesterolemia (a genetic condition that causes very high cholesterol) get screened. It tests a way to reach close relatives so they can learn their risk and consider next steps.
This trial aims to identify kids and teens who may have inherited high cholesterol (especially LDL) and may be at higher risk for early heart artery disease. It may help families learn about their risk and ensure the right follow-up and treatment plan.
This study tests a digital screening method to help identify and diagnose familial hypercholesterolemia, an inherited condition that can cause very high cholesterol. If you participate, you may be invited to complete screening steps to see whether they can find the condition early.
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