Study of people with severe disabilities and their caregivers
This study follows people with severe physical and intellectual disabilities (PIMD/Polyhandicap) and their caregivers over time. It aims to better understand their needs and improve care.
Summary written for real people, not researchers, by Clin2.
Who can take part
- The patient must have a condition called PIMD (Profound Intellectual and Multiple Disabilities) or Polyhandicap (severe motor and intellectual disabilities).
- The patient must be at least 3 years old.
- The patient must be treated at a hospital or clinic that is taking part in this study.
- The patient's legal guardian must have received information about the study and not said no to data collection.
- The patient must be covered by a health insurance plan (like French Social Security).
- Family and professional caregivers taking part must be at least 18, understand French, and agree to participate.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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