Studying support for ALS patients and their family caregivers
Part of Brain & nervous system, Hormones & metabolism clinical trials.
This study looks at how much burden (stress and day-to-day strain) ALS creates for both the patient and the main caregiver. It may help shape better ways to support families facing ALS over time.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You are 18 or older and able to give informed consent.
- You have ALS and have already had at least two team assessments at the ALS center in Marseille, including a psychologist visit.
- Your daily-function level needs noticeable help (Rankin score grade 3 to 5), and you live at home with a main family caregiver.
- You have a primary family caregiver at home (spouse or child) who is willing to join and can be present for hospital visits.
- You were diagnosed with ALS more than 6 months ago, and you understand how serious your condition is.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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