Cancer risk follow-up care for hereditary syndromes
Part of Cancer, Digestive system, Genetic & congenital, Hormones & metabolism, Skin, Women’s health & pregnancy clinical trials.
This study tests a tool to help primary care doctors provide better cancer prevention care for people with hereditary breast and ovarian cancer (HBOC) or Lynch syndrome (LS). It aims to ensure you're up-to-date on recommended screenings and preventive steps.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You are 18 years or older.
- You have been diagnosed with HBOC (hereditary breast and ovarian cancer) or Lynch syndrome (a genetic condition raising cancer risk).
- You are seeing a primary care doctor or nurse practitioner at a participating clinic.
- You are not up-to-date on the recommended cancer prevention care for your specific genetic condition.
- You do not have dementia, are not currently on active cancer treatment, and are not in a long-term care, palliative care, or hospice program.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
Similar studies
Other trials that look related to this one.
This study tests a way to help people with inherited cancer gene mutations manage their health, especially if they live in rural areas. You join if you found out about the mutation more than a year ago.
This study helps identify people who may have an inherited cancer risk and checks how best to support them. Depending on the group, you may only fill out surveys, or you may also create an app account and possibly provide a DNA sample.
This study helps people in Switzerland who already have a known inherited cancer gene change understand what it means for them and their family. It focuses on people with specific known mutations related to hereditary breast/ovarian cancer and Lynch syndrome.
This study tests a website called Kindred that helps African American families understand genetic cancer risk and genetic testing. You would help researchers learn if this tool helps families talk about and understand hereditary cancer risks like BRCA mutations and Lynch Syndrome.
This study tests a program to help families talk about genetic services for Lynch syndrome. It aims to support people who may be at risk but haven't yet had genetic counseling or testing.
This study follows adults with Lynch syndrome (an inherited gene change) using regular questionnaires and tracking health over time. It may help researchers understand how the condition progresses and improve care for people with these gene mutations.
Hear when a new Hereditary Breast/Ovarian Cancer (brca1, brca2) trial opens
We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.