BetterLife FSHD health and research platform
Part of Bones, joints & muscles, Brain & nervous system, Genetic & congenital clinical trials.
This study creates a patient-driven health and research platform for people with FSHD. It aims to collect information to better understand the condition and improve future research and care.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You have a clinical or genetic diagnosis of FSHD, or you have a family history of FSHD and are showing symptoms.
- You are at least 1 year old.
- You live in the United States or its territories.
- If you are 18 or older, you must be willing and able to provide consent.
- If you are under 18, you must be willing to provide assent (when applicable) and have a parent or guardian register and consent for you.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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