National registry of carcinoid heart disease
Part of Cancer, Heart & circulation clinical trials.
This study is a registry that collects information from people with carcinoid heart disease, a heart condition caused by neuroendocrine tumors. By gathering data on symptoms, test results, and outcomes, researchers hope to better understand and improve care for this condition.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You are 18 years or older.
- You have been diagnosed with a neuroendocrine tumor (a rare cancer of hormone-producing cells).
- An echocardiogram (ultrasound of the heart) shows moderate or severe heart valve disease caused by the tumor.
- A blood test shows elevated NT-proBNP (a marker of heart strain).
- You do not have another heart condition that caused your valve disease (like rheumatic heart disease or a birth defect).
- You (or your medical team) can provide the needed medical records and test results.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
Similar studies
Other trials that look related to this one.
This study looks at neuroendocrine tumors by collecting tissue (when available) and tracking how the disease behaves over time. It may help researchers better understand these cancers, including rare cases of adrenocortical cancer.
This study keeps a worldwide record of people with neuroendocrine tumors to learn about care patterns and outcomes. It may help your doctors and future patients by improving how these tumors are monitored and treated.
This is a registry (a research database) for people who are being followed in cardio-oncology, which means care for heart problems related to cancer or cancer treatments. It may help doctors better understand these conditions and improve future care.
This study builds a registry (a secure database) of people who have had cervical neuroendocrine cancer, including small cell or large cell types. It helps researchers learn more about these cancers and may improve future care and research planning.
This study collects and stores medical information from people with cardia cancer. The goal is to better understand care and outcomes over time, which may help improve future treatment planning.
This is a research study that follows families with small intestine carcinoid tumors (and related hormone-related tumors) to learn how these conditions progress over time. It may help doctors better predict risk and health needs for people in similar families.
Hear when a new Neuroendocrine Tumors trial opens
We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.