Rare cancer registry for children and young adults
Part of Cancer clinical trials.
This trial is creating a registry for very rare solid tumors in people up to age 39. Joining helps doctors learn more about these cancers and may connect you with future research opportunities.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You were diagnosed with a very rare solid tumor (about 2 cases per million people each year) within the last year
- You are between 1 month and 39 years old at diagnosis
- You have a doctor who treats you locally
- You or your parent/guardian can understand and sign a consent form
- You do not have certain common childhood cancers like Ewing sarcoma, osteosarcoma, or rhabdomyosarcoma
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
Similar studies
Other trials that look related to this one.
This study follows people (and sometimes family members) connected to rare solid tumors and collects health information and samples (biospecimens). It helps researchers understand how these cancers develop and builds resources for future research, which may benefit you by contributing to better tailored care for rare cancers.
This study collects information from children and young adults who are getting radiation therapy to help improve future treatments. It looks at how radiation affects the body over time.
This study collects information from children and teens with rare solid tumors to better understand these cancers and support future research. You (or your guardian) can join by giving consent, but it’s mainly for people not already registered in certain ongoing pediatric cancer study databases in Germany.
This study is looking at children and teens with very rare tumors to learn more about these conditions and improve future care. It aims to gather information from patients treated at participating centers.
This study is a global registry that collects information about people with rare or hard-to-classify brain tumors (including certain genetic tumor changes). It helps researchers learn more about these tumors and may guide future studies and treatments.
This study is an international registry (a way to collect medical information) for people with certain rare brain tumors, diagnosed since 2010. It helps researchers understand these tumors better, which can guide future treatments.
Hear when a new Other Solid Tumors trial opens
We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.