Tracking arm use at home in non-walking boys with Duchenne
Part of Bones, joints & muscles, Brain & nervous system, Genetic & congenital clinical trials.
This study uses a small wearable device (called Syde) to track arm and hand movement in boys with Duchenne who can no longer walk. The goal is to see if this device can help doctors understand how arm function changes over time, which may guide future care.
Summary written for real people, not researchers, by Clin2.
Who can take part
- Your child must have a genetic test showing Duchenne muscular dystrophy.
- Your child must not be able to walk 10 meters (33 feet) without help from a device or person.
- If your child is under 18, you as a legal guardian must be willing to sign a consent form.
- Your child cannot have had scoliosis surgery in the past 6 months or plan to have it within the next year.
- Your child cannot be in another treatment trial right now.
- You need internet access at home, or you must be able to bring your child to the study site every 6 months to share data.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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