Digital arm monitoring for non-walking Duchenne
Part of Bones, joints & muscles, Brain & nervous system, Genetic & congenital clinical trials.
This study tests a wrist-worn sensor (Syde) to track arm and hand movement in boys with Duchenne who cannot walk. The goal is to see if the sensor can help doctors monitor changes in arm function over time, which may help guide future care.
Summary written for real people, not researchers, by Clin2.
Who can take part
- Must have a genetic diagnosis of Duchenne Muscular Dystrophy (DMD).
- Must be non-ambulant — meaning you cannot walk 10 meters without using a wheelchair, walker, or other aid.
- A parent or guardian must sign a consent form to allow you to take part.
- You cannot have had scoliosis surgery in the last 6 months or have it planned in the next year.
- You cannot be in another study that tests a treatment right now.
- You must have internet at home or be able to come to the hospital in Belgium every 6 months to upload data from a small device.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
Similar studies
Other trials that look related to this one.
This study remotely tracks motor development in children with Duchenne muscular dystrophy or spinal muscular atrophy who were diagnosed at birth or before symptoms started. It aims to see if early monitoring helps improve long-term care and outcomes.
This study uses remote technology, like apps or wearable devices, to monitor motor skills and development in boys with Duchenne muscular dystrophy (DMD). It aims to find better ways to measure how the disease progresses over time without requiring frequent clinic visits.
This study looks at how children and teens with Duchenne muscular dystrophy (DMD) or spinal muscular atrophy (SMA) walk, by having them do walking tests while wearing sensors. The goal is to find better ways to track how these diseases progress and how treatments work over time, without needing blood tests or scans.
This study measures a protein called titin in urine to see if it can help track muscle damage in boys with Duchenne or Becker muscular dystrophy. It also includes healthy boys for comparison.
This study follows boys with Duchenne muscular dystrophy over time to better understand how the condition changes and how standard treatments affect health and function. It does not appear to test a new medicine, but it may help doctors plan better future care and studies.
This study assesses physical activity in people with different muscle diseases (like Duchenne, FSHD, and others) and in healthy volunteers. It helps doctors understand how these conditions affect daily movement and function.
Hear when a new Duchenne Muscular Dystrophy (DMD) trial opens
We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.