Clin2
NCT07875023Possibly a fitNot yet recruiting

Counting carbohydrates to improve glucose control in children with GSD1

Glycogen Storage Disease Type IGlycogen Storage Disease Type IBGlycogen Storage Disease Type IA

Part of Genetic & congenital, Hormones & metabolism clinical trials.

This study tests whether a carbohydrate counting method helps children with glycogen storage disease type 1 (GSD1) better manage their blood sugar, improve quality of life, and affect certain biomarkers. It may help families learn a new way to plan meals and stabilize glucose levels.

Summary written for real people, not researchers, by Clin2.

Phase
N/A
Enrollment
8 people
Ages
2 years to 18 years
Study type
Observational

Who can take part

  • You are between 2 and 18 years old.
  • You have been diagnosed with glycogen storage disease type 1a or 1b.
  • You currently use uncooked cornstarch as part of your treatment.
  • You have not received carbohydrate counting training before.
  • You do not have diabetes, chronic kidney failure, or certain liver diseases.
  • You have not had a liver transplant.
  • You do not have heart, muscle, or bone problems that interfere with the study.
  • You are not fed through a tube (like a feeding tube) and are not still breastfeeding.

View the official record on ClinicalTrials.gov

Quick eligibility check

Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.

Similar studies

Other trials that look related to this one.

NCT07645898Recruiting
Glucose monitoring study of cornstarch in glycogen storage disease

This study uses a glucose monitor (a small sensor you wear) to measure how your blood sugar responds after eating raw cornstarch, a common treatment for glycogen storage disease type I. The goal is to understand how well cornstarch helps keep your blood sugar steady.

Naples, Napoli
NCT06852612Recruiting
Dietary strategies for glycogen storage disease type I

This trial tests different diet strategies to help adults with GSDI (a metabolic condition also known as von Gierke disease) maintain stable blood sugars and avoid dangerous drops. It may help you learn how to better manage your condition through diet.

Bern
NCT06843330Recruiting
Lactate meter accuracy for children with GSD type Ia

This trial tests whether a simple finger-stick lactate meter gives accurate results for children and adults with a specific type of glycogen storage disease (GSD Ia). It aims to find a faster, easier way to monitor health during emergency visits or hospital stays.

Hartford, Connecticut
NCT07459582Recruiting
Home lactate meter and glucose meter accuracy in GSD

This study tests how well a home lactate meter and a standard blood sugar meter work for people with certain types of Glycogen Storage Disease (GSD Ia, Ib, or XI). If you or your child has one of these types, joining could help improve home monitoring.

Hartford, Connecticut
NCT06735755Recruiting· Phase 1/Phase 2
Study of BEAM-301 for glycogen storage disease type Ia

This study tests an experimental medicine called BEAM-301 for people with a specific form of glycogen storage disease type Ia (GSDIa). The goal is to see if it can help reduce dangerous low blood sugar episodes.

Orange, California
NCT07807280Recruiting
Learning carb counting with a continuous glucose monitor

This study tests a new way to learn carb counting using a continuous glucose monitor (CGM). It may help you improve your blood sugar control without needing more injections.

Los Angeles, California

Hear when a new Glycogen Storage Disease Type I trial opens

We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.