Clinical trials
Congenital Central Hypoventilation Syndrome clinical trials
Below are recruiting congenital central hypoventilation syndrome clinical trials, each written for real people, not researchers. We’re tracking 4 recruiting studies, each written for real people, not researchers, below.
Recruiting studies
- NCT06554275Recruiting
CCHS research health hub
This study creates a secure health information hub for people with Congenital Central Hypoventilation Syndrome (CCHS) to help researchers better understand the condition and find new ways to treat it. Being part of this hub may help advance future studies and care options for CCHS.
Chicago, IllinoisAges Any age - NCT03088020Recruiting
CCHS patient registry for people with PHOX2B gene changes
This study is a registry, meaning it collects health information to better understand congenital central hypoventilation syndrome (CCHS). It enrolls only people whose CCHS has been confirmed by a PHOX2B gene test.
Chicago, IllinoisAges Any age - NCT03568669Recruiting
Testing thinking and learning in congenital central hypoventilation syndrome
This study looks at thinking and memory in people with congenital central hypoventilation syndrome (CCHS) to better understand how the condition affects the brain. It may help researchers measure changes over time and guide future care.
Los Angeles, CaliforniaAges 3–85 - NCT06337149Recruiting
Breathing and attention in children with Ondine syndrome
This study looks at how breathing affects attention in children with Ondine syndrome, also known as Congenital Central Hypoventilation Syndrome (CCHS). It aims to understand if children with this condition have changes in attention and how those relate to their breathing patterns, helping doctors plan better care.
ParisAges 6–16
Hear when a new Congenital Central Hypoventilation Syndrome trial opens
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Congenital Central Hypoventilation Syndrome trials by city
Studies with a site in or near these metro areas.
Congenital Central Hypoventilation Syndrome trials by state
Studies with a site anywhere in these states.
Common questions
- Are there clinical trials for congenital central hypoventilation syndrome?
- Yes. Clin2 currently lists 4 recruiting congenital central hypoventilation syndrome studies from the U.S. registry, each rewritten for real people, not researchers, so you can see what it’s testing and who it’s for.
- How do I know if I qualify for a congenital central hypoventilation syndrome trial?
- Each study lists its eligibility criteria — rules about age, diagnosis, and prior treatments. On every Clin2 trial page we explain these in words written for real people and offer a short, optional pre-screen for a fit read. The study team makes the final decision.
- Does it cost anything to join a congenital central hypoventilation syndrome trial?
- Using Clin2 is always free. Many trials cover the cost of the study treatment and related visits; some reimburse travel. The study team explains exactly what’s covered before you decide.
Related conditions
Clin2 helps you find and understand clinical trials and does not provide medical advice. Study data comes from ClinicalTrials.gov. Talk with your doctor about whether a specific trial is right for you.