Clin2
NCT03568669Possibly a fitRecruiting

Testing thinking and learning in congenital central hypoventilation syndrome

Congenital Central Hypoventilation SyndromeCongenital Central HypoventilationCCHSCCHS With Hirschsprung DiseaseCCHS With Neural Crest TumorCCHS With Neuroblastoma

Part of Brain & nervous system, Lungs & breathing clinical trials.

This study looks at thinking and memory in people with congenital central hypoventilation syndrome (CCHS) to better understand how the condition affects the brain. It may help researchers measure changes over time and guide future care.

Summary written for real people, not researchers, by Clin2.

Phase
N/A
Enrollment
1,000 people
Ages
3 years to 85 years
Study type
Observational

Who can take part

  • You have a CCHS diagnosis confirmed by a PHOX2B gene test
  • You can speak English as your main language
  • You can read English as your main language
  • You should not be unsure about your CCHS diagnosis—you need confirmation
  • You should not join if English speaking/reading is not your primary language

View the official record on ClinicalTrials.gov

Quick eligibility check

Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.

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