Understanding fibrous dysplasia and McCune-Albright syndrome
Part of Bones, joints & muscles clinical trials.
This study follows patients with fibrous dysplasia (a condition where normal bone is replaced by fibrous tissue) or McCune-Albright syndrome (a genetic condition affecting bone, skin, and hormones) to understand how these conditions develop and progress over time. There is no experimental treatment; researchers simply want to learn more about these rare conditions.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You or your child have been evaluated by a doctor who thinks you might have fibrous dysplasia or McCune-Albright syndrome
- You are willing to participate in evaluations and follow-up visits
- You or your child's parent/guardian can understand the study and provide informed consent
- You are at least 1 day old (newborns and all ages welcome)
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
Similar studies
Other trials that look related to this one.
This is a patient registry that collects health information from people with fibrous dysplasia, McCune-Albright syndrome, or Mazabraud’s syndrome. It helps researchers understand these conditions better and may support future studies.
This trial studies denosumab to reduce pain and active bone disease in adults with fibrous dysplasia / McCune-Albright syndrome. You may be eligible if your FD/MAS is causing persistent pain and has signs of active bone turnover, despite adequate pain treatment.
This study screens people who may have an inherited risk for certain cancers due to their personal or family medical history or known gene changes. By completing a survey, you can help researchers find the right study for you and learn more about your cancer risk.
This study looks at why people with inherited bone marrow failure syndromes (rare genetic conditions affecting blood cell production) have higher cancer risk. Researchers want to understand the genetic and medical factors that increase cancer likelihood, which could help doctors monitor and protect affected patients and their families.
This study looks at bone (skeletal) disorders to better understand possible genetic causes, especially when phosphate levels or bone growth are affected. You may join either if you (or your child) has a bone disorder, or if you’re an unaffected family member who might help compare results.
This study follows people who may have too much “androgen” (a hormone) to learn what causes it and how it changes over time. You may be followed even if the exact cause is not yet known, and your results may help doctors better understand these conditions.
Hear when a new McCune Albright Syndrome trial opens
We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.