Study collecting information from people with ARPKD
Part of Brain & nervous system, Digestive system, Eyes & vision, Genetic & congenital, Kidney & urinary, Women’s health & pregnancy clinical trials.
This study looks at medical records, imaging, and genetic testing for people with autosomal recessive polycystic kidney disease (ARPKD). It may help researchers better understand the condition and how it affects the liver and kidneys.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You (or your child) have ARPKD confirmed by a history, scan, tissue sample, exam after death, or genetic test
- Your ARPKD affects the liver and/or kidneys with scarring and cyst-type changes
- You do not have urinary tract birth defects (urinary tract malformations)
- You do not have major birth defects in other body systems
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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