Lymphangioleiomyomatosis patient registry in France
Part of Blood & lymphatic, Cancer, Immune system & allergy clinical trials.
This trial is a national registry that collects information about people with lymphangioleiomyomatosis to better understand the condition and care over time. It may help by contributing real-world data from patients with sporadic disease or related tuberous sclerosis.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You have lymphangioleiomyomatosis (sporadic), or it is linked to tuberous sclerosis
- You were diagnosed at some point after January 1, 2008
- You have been hospitalized for this condition since January 1, 2008, or you have had a consultation since then
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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