DS-Connect registry for people with Down syndrome
Part of Brain & nervous system, Genetic & congenital clinical trials.
This is a study registry that collects information from people with Down syndrome (or certain forms like mosaic or partial trisomy 21) and their families. It helps researchers learn about health and needs over time and makes it easier to contact people for future studies.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You (or your child) has Down syndrome, including mosaic or partial trisomy 21
- If you are 18 or older, you can consent (or your legal representative can)
- If you are under 18, your parent/guardian can consent for you
- If your age is 7–18 and you can understand and agree, you must give assent
- You (or your parent/guardian) can read and understand English or Spanish
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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