Alport syndrome registry to help delay kidney failure
Treatments studied
Part of Genetic & congenital, Kidney & urinary, Skin, Women’s health & pregnancy clinical trials.
This is a registry that collects information from people with Alport syndrome to better understand the disease and how to delay kidney failure. It may help researchers learn which factors and treatments are most important over time.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You have been diagnosed with Alport syndrome (for example by a kidney biopsy and/or genetic testing).
- Your diagnosis can be confirmed by either biopsy results, DNA (gene) testing, or both.
- Your Alport syndrome can be caused by different gene changes (on X-linked, autosomal, or digenic forms).
- You must be willing to give informed consent to join the registry.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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