Alport Syndrome Patient Registry
Part of Genetic & congenital, Kidney & urinary, Skin, Women’s health & pregnancy clinical trials.
This registry collects health information from people with Alport syndrome to help researchers better understand the condition and improve future treatments.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You must have a confirmed diagnosis of Alport syndrome from a doctor or genetic counselor.
- You or your caregiver must sign a consent form (and children 7-17 will also sign a simple form).
- You must live in the United States, US territories, or outlying islands.
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
Similar studies
Other trials that look related to this one.
This is a registry that collects information from people with Alport syndrome to better understand the disease and how to delay kidney failure. It may help researchers learn which factors and treatments are most important over time.
This study follows people diagnosed with Alport syndrome to better understand the condition and its effects. It may help researchers learn what to watch for over time and how the disease progresses.
This study looks at how specific genetic changes (genotypes) relate to kidney problems and urine blood findings in people with Alport syndrome. It may help doctors predict disease course and tailor care, though it may not involve new treatment.
This trial tests a medicine called an ACE inhibitor (a type of blood pressure drug) in people with early-stage Alport syndrome, a genetic kidney condition. The goal is to see if it can protect kidney function and reduce protein in urine, before kidney damage gets worse.
This study creates a registry to collect health information from people with rare kidney diseases. It aims to improve understanding and future treatments by tracking patient experiences.
This study tests if stem cells from umbilical cord blood can help children aged 3 to 12 with Alport syndrome, a genetic kidney disease. It aims to slow kidney damage and improve function.
Hear when a new Alport Syndrome trial opens
We’ll email you when one opens — at most once a week, no account needed, unsubscribe anytime.