Registry for pulmonary alveolar proteinosis (PAP) patients
Part of Lungs & breathing clinical trials.
This study keeps a national record of people with pulmonary alveolar proteinosis (PAP). It includes one “snapshot” group and one group that follows people with autoimmune PAP and asks about symptoms and quality of life.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You (and your guardian, if needed) can sign consent; children may also give assent
- You have been diagnosed with PAP (by blood test, imaging, biopsy, or lung fluid testing)
- For the autoimmune-focused part, you have autoimmune PAP confirmed by a positive abnormal blood GM antibody test
- You have chest imaging (CT or X-ray) or test results that match PAP
- You do not have another serious health problem that would prevent finishing the study
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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