Registry for people at high risk for pancreatic cancer
Part of Cancer, Digestive system, Genetic & congenital, Hormones & metabolism, Skin clinical trials.
This study is a registry (a way to track health over time) for people with a strong family history or certain inherited genetic risks for pancreatic cancer. It may help doctors learn how best to monitor and protect high-risk people, and to see who benefits most from follow-up.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You are 18 years old or older
- You can speak either English or Spanish
- You have a close family member (parent, sibling, or child) who has pancreatic cancer
- Or you have an inherited gene risk such as BRCA1, BRCA2, PALB2, or ATM with a family member who has pancreatic cancer
- Or you have one of these specific risks: a p16 (CDKN2A) mutation with a family member with pancreatic cancer, STK11 mutation (Peutz-Jeghers), Lynch syndrome (HNPCC) with a family member with pancreatic cancer, or a hereditary pancreatitis mutation
- Or you have a history of pancreatic cysts (especially IPMNs) that are 1 centimeter or larger
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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