Register for people with Prader-Willi syndrome
Part of Brain & nervous system, Genetic & congenital, Hormones & metabolism clinical trials.
This is a patient registry that collects information about people with Prader-Willi syndrome. It may help researchers better understand the condition and plan future studies.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You have been diagnosed with Prader-Willi syndrome
- You agree to be included in a research patient registry
- You can provide required personal/medical information for the registry
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
Similar studies
Other trials that look related to this one.
This study looks at autism-like symptoms and sensory profiles in children with Prader-Willi syndrome (PWS). It aims to better understand these traits to improve care and support.
This trial tests an investigational drug called CSTI-500 for people with Prader-Willi syndrome who are in the hyperphagia (constant hunger) phase. It aims to see if the drug can improve behavior and reduce overeating. You and your caregiver will need to visit the clinic regularly and answer questions about symptoms.
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This trial tests an experimental drug called BMB-101 to see if it can help control extreme hunger in adults with Prader-Willi Syndrome. It aims to improve safety and quality of life.
This study is a registry for people who may be at risk for genetic prion disease because of their family history. It involves genetic testing and follow-up visits to track health over time.
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