Register for people with Prader-Willi syndrome
Part of Brain & nervous system, Genetic & congenital, Hormones & metabolism clinical trials.
This is a patient registry that collects information about people with Prader-Willi syndrome. It may help researchers better understand the condition and plan future studies.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You have been diagnosed with Prader-Willi syndrome
- You agree to be included in a research patient registry
- You can provide required personal/medical information for the registry
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
Similar studies
Other trials that look related to this one.
This study looks at autism-like symptoms and sensory profiles in children with Prader-Willi syndrome (PWS). It aims to better understand these traits to improve care and support.
This trial tests an investigational drug called CSTI-500 for people with Prader-Willi syndrome who are in the hyperphagia (constant hunger) phase. It aims to see if the drug can improve behavior and reduce overeating. You and your caregiver will need to visit the clinic regularly and answer questions about symptoms.
This trial studies whether taking prebiotics and probiotics can help children with Prader-Willi syndrome manage obesity. It’s testing a gut-focused approach to weight control over the study period.
This study tests an experimental drug called BMB-101 to see if it can help reduce the constant hunger (hyperphagia) that is common in Prader-Willi syndrome. The trial will check how safe and effective the drug is, and if it works, it may offer a new treatment option.
This study is for people who have a rare syndrome or rare congenital condition and are seen at a rare-disease clinic. It aims to better understand these conditions and how care works in a team setting, which may help guide future treatment decisions.
This study tests whether giving growth hormone to adults with Prader-Willi syndrome can improve their health and well-being. The goal is to see if the treatment is safe and helpful for adults with this condition.
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