Registry study for people with sickle cell disease
Part of Blood & lymphatic, Genetic & congenital clinical trials.
This study is a registry that collects information about people living with sickle cell disease. It may help researchers better understand sickle cell types in Germany, Austria, and Switzerland and support future research and care.
Summary written for real people, not researchers, by Clin2.
Who can take part
- You can sign informed consent to join the study
- You currently live in Germany, Austria, or Switzerland
- Your sickle cell diagnosis is confirmed by blood testing or genetic testing
- Your sickle cell type is one of several forms (like HbSS, HbSC, or HbS/beta-thalassemia)
- You do NOT have only the mild carrier form (heterozygous HbS trait)
Quick eligibility check
Answer a few plain-language questions, based on this study's own requirements, to get a preliminary sense of fit.
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